tag:blogger.com,1999:blog-1416898258598334340.post8827734502945406740..comments2024-01-16T13:01:11.207-05:00Comments on Parenting the Tiniest of Miracles: Not SuperwomanJessieLeighhttp://www.blogger.com/profile/02385662523400334552noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1416898258598334340.post-71755287045347884702008-08-26T14:10:00.000-04:002008-08-26T14:10:00.000-04:00Janet- Welcome! So happy to have you here. And ...Janet- Welcome! So happy to have you here. And a big congrats to little Alex for graduating to a big-boy bed! : ) The NICU ride is a rocky one, to be sure, but it sounds like your little guy is doing well and you definitely have the right attitude about it. Feel free to vent or ask questions here as needed. That's what this blog is designed for.JessieLeighhttps://www.blogger.com/profile/02385662523400334552noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-41333567260953502872008-08-26T13:59:00.000-04:002008-08-26T13:59:00.000-04:00Just found your blog, and holy cow did I need to r...Just found your blog, and holy cow did I need to read this today. Not even my mother really gets it when it comes to life with Alex, our little 10 1/2 week old 27 weeker (2 kilos this weekend, after starting out at 1 lb 7 oz), who is still in the NICU on CPAP, but graduated to a crib this weekend after a week and a half of good temperatures. He's amazing, and I don't know how we do what needs to be done, but we do, and we will.kadierahttps://www.blogger.com/profile/03303473037288003918noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-38832356397560682022008-08-16T23:45:00.000-04:002008-08-16T23:45:00.000-04:00JessieLeigh,I'm so glad you're doing this blog. Ju...JessieLeigh,<BR/><BR/>I'm so glad you're doing this blog. Just reading what little I have has given me a new perspective that I might not have considered. Reminds me not to take my own situation for granted, but to be thankful, and more understanding. Thanks!<BR/><BR/>Can you send me your email?FishMamahttps://www.blogger.com/profile/02048416191022893529noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-80616271406435515392008-08-16T19:13:00.000-04:002008-08-16T19:13:00.000-04:00Liz,I'm so happy to have you hear! Thanks so much...Liz,<BR/><BR/>I'm so happy to have you hear! Thanks so much for sharing your experience with us. Surfactant has made a HUGE difference in the quality of life (and breathing!) for so many preemies. The steroid shots they can give mothers in preterm labor can sometimes make all the difference. My labor progressed too quickly for the steroids but, even so, I am so very grateful for all the medical advances we've seen over the years! Thanks for stopping by. I'll hope you'll check in again.JessieLeighhttps://www.blogger.com/profile/02385662523400334552noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-91627295710145839132008-08-16T13:39:00.000-04:002008-08-16T13:39:00.000-04:00I am so excited to find this blog. 10 years ago, ...I am so excited to find this blog. 10 years ago, I gave birth to my first son at 26 1/2 weeks. He weighed 2 lbs 1 oz. Even though it's been 10 years, I went on to eventually have a child born full term, and my "preemie" is now a big boy, the pain of having a preemie never goes completely away. It's like a little club that you belong to...LOL. Ten years ago preemie clothes were JUST becoming sold in regular stores and there wasn't much out there for support. Remember these little preemies didn't have such a great chance of survival until like 1990 or something when they invented the shot for the lungs (surfactant or something?) I am so glad to have found your blog! :)<BR/><BR/>LizAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-73376489540119144672008-08-15T14:26:00.000-04:002008-08-15T14:26:00.000-04:00You raise a great point, Ryann... there are a lot ...You raise a great point, Ryann... there are a lot of insensitive, ignorant comments thrown around too. My all-time favorite was: "If a baby can do so well born early, why do we have to go through the horror of carrying them so long?" (asked to me by a hugely pregnant woman whose baby bump made my eyes burn with unshed tears of envy)...<BR/><BR/>In these cases, I think people were actually speaking in admiration, as if we're doing something incredible by taking on these challenges. But, in the end, it's just as you say..."you just do what you have to do to make it through the day..."JessieLeighhttps://www.blogger.com/profile/02385662523400334552noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-31805492469037985972008-08-15T12:24:00.000-04:002008-08-15T12:24:00.000-04:00Oh, and it's such a pleasure to have to carry arou...Oh, and it's such a pleasure to have to carry around 3+ outfits and a half dozen burp clothes because Addyson vomits constantly. And, true, we don't have to buy baby food or cheerios for her to eat, but try feeding your baby through a tube that goes directly into her stomach, not being able to give her tylenol unless you have her tube supplies, and having to listen to the beeps of the feeding machine when there is a kink in the tube! Please note my sarcastic tone!Ryannhttps://www.blogger.com/profile/06827687806737176098noreply@blogger.comtag:blogger.com,1999:blog-1416898258598334340.post-61316060256798992792008-08-15T12:21:00.000-04:002008-08-15T12:21:00.000-04:00AMEN my dear! One thing I hear a lot now is... "Y...AMEN my dear! One thing I hear a lot now is... "You are so lucky that she's such a good girl, doesn't really cry or throw a fit, sleeps well, and is mellow. And she doesn't ever seem to be sick like most kids... getting a cold or whatever!" I'd love to reply with... "oh, yes, of course, being a parent to Addyson has been so easy. she's never been a hassle. and although she sleeps through the night, try waking up to a phone call from the NICU at 3 AM with the doctor saying they had to intubate your daughter because she wasn't breathing. She doesn't get sick because we don't ever take her out or have visitors. Those who are lucky enough to visit must go through the battery of questions and scrub up like they are going into surgery!" So, yes... I can relate, you just do what you have to do to make it through the day and make sure your preemie is cared for.Ryannhttps://www.blogger.com/profile/06827687806737176098noreply@blogger.com