Friday, August 22, 2008

The Other Victim: Your Marriage


I don't mean to be overly dramatic with that title. I do want to address what too many of us forget while we're getting through the early days, months, and sometimes even years of caring for our micropreemies.

I would say (with quite a lot of confidence) that my husband and I had a strong marriage when our second child, our micropreemie daughter, was born. We had been through illness, death, and the birth of our first child together. We had been through emotional upheaval and the one thing that never seemed to falter was, well, US. We always stayed committed, always communicated, always formed a united front.

And then C. was born. All of a sudden, I was trying to recover from a massive surgery and my husband was struggling to make up missed hours at a job with no benefits. We had a ten month old who didn't yet walk and a newborn fighting to live. We were two hours from home with no family in the immediate area. In order to care for our older child and still visit our new baby, we went on "shifts". My husband's commute was long and my days of entertaining a not-yet-one-year-old in the Ronald McDonald house were challenging. We were both crippled with guilt because we couldn't be everywhere all the time. We were exhausted because he took the "late shift" for visits and I was still waking twice a night to pump (and often soothe our son back to sleep). We simply no longer had time to invest in our relationship.

I remember one night when I dashed over to the hospital after some sniping verbal exchange between my husband and me. Tears burned behind my lids, but I just didn't have time to deal my problems with him; I had a little baby to see. I ran into another couple in the hall, parents of another micropreemie baby girl. And I asked them, "Do you ever feel like this experience is beating the heck out of your marriage?" And they both said, "Oh, yes."

Turns out we're not alone. An article from USA Today declares in its headline:

Chronically ill child can doom marriage


Ah hah. Well, that's not such great news for those of us parenting our preemies. But there is plenty of hope. Just like in so many other situations, the old adages really do hold true. "What doesn't kill you makes you stronger" and "This too shall pass" were both phrases that I reflected on a lot.

We made it through, as you may have already guessed. We'll celebrate seven years of marriage in a couple months. While there's a whole lot we could have done better, here are a few things I think we did right:

1. We ate dinner together every night and touched base.
2. I called my husband immediately following any updates I received from the NICU.
3. We cherished and snuggled our older child too.
4. We visited the NICU together any time we had the opportunity, i.e. when another family member was around.
5. We shared a glass of wine and quiet conversation on Valentine's Day.

What did you do or are you doing "right" to nurture you marriage? What do you wish you would have done differently? Please share in the comments!

Thursday, August 21, 2008

Providing Hospitality to the Hospitalized...


Fishmama has a great recipe swap going on over at Life as Mom. They're sharing recipes you can give to the proud new parents when a baby is born... what a fun topic!

Here are ten great things to deliver (in bag or box or basket) to the parents of a micropreemie who are unlikely to have a kitchen at their disposal:

  1. bottled water
  2. granola bars
  3. jerky
  4. pretzels/nuts
  5. pre-made sandwiches (bonus points if you enclose condiment packets)
  6. yogurt/pudding cups
  7. fruit (apples, bananas, pears, etc. hold up well)
  8. string cheese
  9. individual snack packs (little baggies full of trail mix would be perfect)
  10. gift card to a fast, local restaurant
Quick is the name of the game. Squeezing in protein and whole grains will help keep these new parents going. These may not look impressive or glamorous, but they will be much appreciated. Trust me.

Smile at someone today...


Or, alternatively, "Be a pest like me..."

Either title could suit this post.

If you've been in the NICU for a little while now and have maybe settled in a bit (translation: you're no longer jumping at every beep and flash around you), I urge you to do just one extra thing today: Smile at someone new. It was kind of a standing joke between my husband, the nurses, and myself. I would always choose someone who looked super detached, lost, and- to be honest- unfriendly. That individual would become my "project".

Now, I'm not advocating that you truly pester or bother this person. Just be a consistent smile in his or her life. Say "hi". Introduce yourself if the opportunity arises. You'd be amazed at some of the relationships I managed to get going.

I like to think that maybe I brightened these individuals' lives a little. I can't say for sure. But I can tell you that it was wonderful for me.

And I can also tell you that I will forever be grateful to the couple who first smiled, said "hi", and introduced themselves to my husband and me...

Take care of yourself, too...


In honor of this week's "Three Things You Should Know Thursday", I want to remind you to take care of yourself too. It's easy to let your own care slide when you're riding the emotional roller coaster of having your preemie in the hospital. Here are three things that you should know that might help you decide to try harder to get some rest, nourish your body, and stay connected with others:


1. Your memory and decision-making skills are sharper when you're well-rested. You are going to be called upon to remember a LOT of numbers and conditions. You will also be asked to give consent to innumerable procedures. Letting yourself get some sleep will help you be more useful to your child when you're awake.


2. You're more likely to be successful pumping if you stay hydrated and well-fed. You cannot expect your body to produce quality food for your baby and if you're not providing it with quality food to start. (For non-nursing mommies and all daddies-- You also need to stay nourished just to have energy. This whole experience is draining enough without complicating matters. Aim to stay hydrated and get quality grains and protein several times a day.)


3. Stable relationships with others will provide you with the emotional support to carry on. Staying connected with others helps you to get help when you need it which may alleviate at least a little of the stress you're feeling. All babies can pick up on our stress levels; the last thing your tiny little fighter needs is to feel your tension.


So... take care of yourself. For your baby's sake.

Wednesday, August 20, 2008

When I feel sorry for myself...


... I like to look at this picture.

Just over a month old and barely two pounds, my sweet baby girl had just been taken off the ventilator and put on the C-Pap. Wires and tubes criss-crossed in and out all over her tiny body. Monitors and medications were still a constant part of her life. They stuck her tiny foot to draw blood every two hours all day long. But what did she do?

She shared her very first smile.

My precious inspiration.

Car Seat Flippin' Reminder!


Speaking of car seats, just a quick reminder...


Before you turn your baby front-facing, please be sure he/she is BOTH:

-at LEAST one-year old


AND


-at LEAST 20 pounds


That's AND, people. If you're parenting a micropreemie, I'd be willing to bet you'll hit 1-yr old before you hit 20 lb. And, still, keep 'em rear-facing. It's safer. You don't endure months on end in a hospital to take chances with your precious child...
***Just a quick reminder- as always, ask your pediatrician if you have concerns. I am aware of at least two micropreemies who simply got way too long to be rear-facing anymore. They were well over a year but not quite 20 pounds when they "made the switch". You'll want to act on the advice of an expert in these cases!***

Tuesday, August 19, 2008

Call your electric company!


Quick piece of advice if you're heading home with your baby on oxygen--


Call your electric company.


Households that involve individuals requiring supplemental oxygen to breathe are on a priority list to receive servicing in the event of a power loss. Make sure you let them know so they're aware of your status before a power outage.